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    <https://w3id.org/ro/terms/earth-science#score> "17.0" .
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  <https://w3id.org/ro-id/5706c642-6990-423e-b4e8-48b09f23c877> <http://schema.org/name> "Medical staff" ;
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    <https://w3id.org/ro/terms/earth-science#path> "Health/Medical profession/Medical staff" .
  <https://w3id.org/ro-id/59839531-a007-4a10-97ea-6b380ba0378f> <http://schema.org/name> "caregiver burden" ;
    a <https://w3id.org/ro/terms/earth-science#Phrase> ;
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    <https://w3id.org/ro/terms/earth-science#score> "5.5" .
  <https://w3id.org/ro-id/5e1ea08c-4799-4d97-8c22-d1737f2db8a2> <http://schema.org/name> "In Apr-2020" ;
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  <https://w3id.org/ro-id/5f9352ea-a53e-49b1-9e24-29c130e26058> <http://schema.org/name> "Music" ;
    a <https://w3id.org/ro/terms/earth-science#IPTC> ;
    <https://w3id.org/ro/terms/earth-science#path> "Arts, culture and entertainment/Arts and entertainment/Music" .
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    a <https://w3id.org/ro/terms/earth-science#IPTC> ;
    <https://w3id.org/ro/terms/earth-science#path> "Health" .
  <https://w3id.org/ro-id/67d5d9c6-552e-43ae-9edd-e982277aabc3> <http://schema.org/name> "health status" ;
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    <https://w3id.org/ro/terms/earth-science#score> "1.4761965870857239" .
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  <https://w3id.org/ro-id/6dcc0d8b-390f-4ac2-81f0-31a9eb40dd60> <http://schema.org/name> "quality of life" ;
    a <https://w3id.org/ro/terms/earth-science#Phrase> ;
    <https://w3id.org/ro/terms/earth-science#normScore> "0.45190445448676564" ;
    <https://w3id.org/ro/terms/earth-science#score> "0.7" .
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    a <https://w3id.org/ro/terms/earth-science#IPTC> ;
    <https://w3id.org/ro/terms/earth-science#path> "Arts, culture and entertainment/Arts and entertainment/Music/Musical instrument" .
  <https://w3id.org/ro-id/8611b3b8-61ce-464d-8b21-01922e2c3ea8> <http://schema.org/name> "Lateral Scher." ;
    a <https://w3id.org/ro/terms/earth-science#Sentence> ;
    <https://w3id.org/ro/terms/earth-science#normScore> "4.930006086427268" ;
    <https://w3id.org/ro/terms/earth-science#score> "8.1" .
  <https://w3id.org/ro-id/8de398b6-2b7c-4418-baf6-0845724bbb97> <http://schema.org/name> "According to the COVID-QoL questionnaire, caregivers perceived lower family help compared to patients (p < 0.001). Conclusions: Restricted measures of lockdown period during COVID-19 pandemic did not result in a significant reduction of QoL in our cohort of ALS patients, while caregiver burden significantly increased." ;
    a <https://w3id.org/ro/terms/earth-science#Sentence> ;
    <https://w3id.org/ro/terms/earth-science#normScore> "9.373097991479003" ;
    <https://w3id.org/ro/terms/earth-science#score> "15.4" .
  <https://w3id.org/ro-id/976aabb0-7b38-441a-96b3-49844ba773c5/#enrichment_service-account-enrichment> <http://schema.org/name> "service-account-enrichment" ;
    a <http://xmlns.com/foaf/0.1/Agent> .
  <https://w3id.org/ro-id/976aabb0-7b38-441a-96b3-49844ba773c5/> <http://schema.org/about> <http://eurovoc.europa.eu/4921> ;
    <http://schema.org/author> <https://orcid.org/0000-0002-2736-0052> ;
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    <http://schema.org/contentUrl> "https://api.rohub.org/api/ros/976aabb0-7b38-441a-96b3-49844ba773c5/crate/download/" ;
    <http://schema.org/creator> <mailto:service-account-generation-service> ;
    <http://schema.org/dateCreated> "2021-12-10 09:57:08.786289+00:00" ;
    <http://schema.org/dateModified> "2025-03-05 00:46:17.227887+00:00" ;
    <http://schema.org/datePublished> "2021-12-10 09:57:08.786289+00:00" ;
    <http://schema.org/description> "Objective: To assess patients Quality of life (QoL) and the burden of their caregivers during Covid-19 pandemic and specifically the impact of two-month lockdown period. Methods: In April 2020, a total of 60 patients and 59 caregivers were administered by phone scales assessing patients' QoL (McGill QoL Questionnaire), general health status (EQ-5D-5L), and caregiver burden (Zarit Burden Interview). The administration was repeated one month after the end of lockdown measures, with the addition of a qualitative questionnaire (COVID-QoL Questionnaire) exploring family reorganization and personal perception of lock down. Results: QoL and perceived health status did not worsen during lockdown, while caregiver burden increased (p = 0.01). Patient's QoL and caregiver burden were inversely correlated at T1 (ZBI total score mildly correlated with Mc Gill existential subscore, p = 0.02, rho = 0.30 and with Mc Gill total score, p = 0.05, rho = 0.265). No significant correlations were found at T2. According to the COVID-QoL questionnaire, caregivers perceived lower family help compared to patients (p < 0.001). Conclusions: Restricted measures of lockdown period during COVID-19 pandemic did not result in a significant reduction of QoL in our cohort of ALS patients, while caregiver burden significantly increased. ALS motor impairment may have played a role in the unchanged life conditions of patients. Instead, the restriction of family help for primary caregivers could be responsible of their increased burden, reflecting the importance of a wide social support in the management of this clinical condition." ;
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    <https://www.w3.org/ns/iana/link-relations/relation#cite-as> "Foglini, Federica. \"Amyotrophic lateral sclerosis caregiver burden and patients' quality of life during COVID-19 pandemic.\" ROHub. Dec 10 ,2021. https://w3id.org/ro-id/976aabb0-7b38-441a-96b3-49844ba773c5." .
  <https://w3id.org/ro-id/976aabb0-7b38-441a-96b3-49844ba773c5/resources/e8d6574a-b552-475b-8d7f-04a8dcf5b90b> <http://schema.org/author> <mailto:service-account-generation-service> ;
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    <http://schema.org/dateCreated> "2021-12-10 09:57:11.268079+00:00" ;
    <http://schema.org/dateModified> "2021-12-10 09:57:11.269490+00:00" ;
    <http://schema.org/description> "Objective: To assess patients Quality of life (QoL) and the burden of their caregivers during Covid-19 pandemic and specifically the impact of two-month lockdown period. Methods: In April 2020, a total of 60 patients and 59 caregivers were administered by phone scales assessing patients' QoL (McGill QoL Questionnaire), general health status (EQ-5D-5L), and caregiver burden (Zarit Burden Interview). The administration was repeated one month after the end of lockdown measures, with the addition of a qualitative questionnaire (COVID-QoL Questionnaire) exploring family reorganization and personal perception of lock down. Results: QoL and perceived health status did not worsen during lockdown, while caregiver burden increased (p = 0.01). Patient's QoL and caregiver burden were inversely correlated at T1 (ZBI total score mildly correlated with Mc Gill existential subscore, p = 0.02, rho = 0.30 and with Mc Gill total score, p = 0.05, rho = 0.265). No significant correlations were found at T2. According to the COVID-QoL questionnaire, caregivers perceived lower family help compared to patients (p < 0.001). Conclusions: Restricted measures of lockdown period during COVID-19 pandemic did not result in a significant reduction of QoL in our cohort of ALS patients, while caregiver burden significantly increased. ALS motor impairment may have played a role in the unchanged life conditions of patients. Instead, the restriction of family help for primary caregivers could be responsible of their increased burden, reflecting the importance of a wide social support in the management of this clinical condition." ;
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